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Feature Articles

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

  1. Michelle L. Katz,
  2. Tara Kaushal,
  3. Zijing Guo,
  4. Alina Cheema,
  5. Rachel Gerrard and
  6. Lori M. Laffel
  1. Joslin Diabetes Center, Boston, MA
  1. Corresponding author: Michelle L. Katz, Michelle.Katz{at}joslin.harvard.edu
Diabetes Spectrum 2021 Jan; 34(1): 52-59. https://doi.org/10.2337/ds20-0042
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Abstract

AIMS Conversations about diabetes complications with adolescents and parents can be difficult and emotionally charged. To better inform conversations between providers and families, we sought adolescent and parent perspectives regarding their knowledge of long-term complications (LTCs), where they receive this information, and what they would like to learn from clinicians.

METHODS Adolescents with type 1 diabetes and parents of adolescents with type 1 diabetes participated in semistructured interviews querying knowledge of LTCs, sources of information, and preferred ways for providers to discuss LTCs. Interview transcripts were coded and categorized into central themes by content analysis.

RESULTS Participants included 22 adolescents (17.4 ± 1.7 years of age, diabetes duration 9.7 ± 4.0 years) and 25 parents (41–60 years of age, 84% mothers). Five themes related to complications were identified: 1) “Limited Adolescent Knowledge of Complications,” 2) “Discussing Complications Is Important but Not Now or Not for Me,” 3) “Outside Sources Overestimate Risk,” 4) “Avoid Scare Tactics” and 5) “Emphasize Prevention.” Adolescent and parent perspectives were similar, although parents showed greater understanding of complications.

CONCLUSION When discussing complications, individualized, factual, positive, and prevention-focused conversations may be better received by adolescents with type 1 diabetes and their families.

  • © 2020 by the American Diabetes Association
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Diabetes Spectrum: 34 (1)

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January 2021, 34(1)
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Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications
Michelle L. Katz, Tara Kaushal, Zijing Guo, Alina Cheema, Rachel Gerrard, Lori M. Laffel
Diabetes Spectrum Jan 2021, 34 (1) 52-59; DOI: 10.2337/ds20-0042

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Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications
Michelle L. Katz, Tara Kaushal, Zijing Guo, Alina Cheema, Rachel Gerrard, Lori M. Laffel
Diabetes Spectrum Jan 2021, 34 (1) 52-59; DOI: 10.2337/ds20-0042
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© 2021 by the American Diabetes Association. Diabetes Spectrum Print ISSN: 1040-9165, Online ISSN: 1944-7353.